Reporting on What is going on in the World. I'm a Crohn's Advocate and currently a Volunteer for the Crohn's and Colitis Foundation Of America San Diego and Desert Area Chapter.
Tuesday, June 16, 2015
A 3-year-old IBD Warrior
Here is our CCFA June 2015 Newsletter Issue Providing Hope and Inspiring Action | Latest News from CCFA Crohn's and Colitis Foundation of America
Providing Hope and Inspiring Action | CCFA
JUNE 2015 ISSUE
Kendyll: A 3-year-old IBD Warrior
At just 21 months, Kendyll was diagnosed with Crohn's disease… and then ulcerative colitis. Today, she continues to suffer from chronic diarrhea, vomiting, sepsis and various other problems that have caused her to be hospitalized numerous times – but she doesn't let it stop her. Despite everything she's been through, Kendyll is a strong, happy, spirited child who loves going outside and spending time with her family. She is an extraordinary little IBD warrior!
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Traveling with IBD This Summer
Don't let IBD get in the way of your summer vacation! Planning ahead and preparing for any possible unexpected events is the key to ensuring a smooth trip. Doing simple things like bringing a copy of your prescriptions and carrying medications in their original bottles onto the plane can make a big difference. Check out our general travel recommendations, special tips for summer vacations and FAQs about air travel. You can also call the IBD Help Center at 1.888.MY.GUT. PAIN (888-694-8872), email us at firstname.lastname@example.org or chat with us online!
Support groundbreaking IBD research
Through our pediatric, microbiome and genetics initiatives, CCFA scientists are learning about the causes of IBD and working to find more effective, personalized treatments. Please support this cutting-edge work with a gift to CCFA today.
Who will you fight for?
Team Challenge is ready to "Fight for Independence from IBD" – just in time for the 4th of July! Join our virtual race on Independence Day to benefit CCFA by running or walking a 5K or 10K anywhere you want! With your $35 registration fee, you'll get an awesome die-cast medal and personalized bib. Be sure to follow the race on social media too at #IndependencefromIBD!
Know the Basics: Understanding Clinical Trials – A Webcast
Learn the basics of clinical trials, including the role they play in advancing research, types of clinical trials and various phases of a study. This program will also highlight what patients need to know about informed consent and available resources for more information about clinical trials.
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Upcoming CCFA Facebook Live Event
On Wednesday, June 24th from 5pm-6pm EST, Dr. Sushila Dalal from the University of Chicago will answer patients' questions on "Biologic Therapy: Risks & Benefits." Join us on Facebook.
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IBD Clinical Trials and Other Studies
CCFA provides a comprehensive database of studies, clinical trials and other research on Crohn's disease and ulcerative colitis. Some of the recently added studies include:
A Randomized, Double-blind, Multicenter Study to Explore the Effect of GED-0301 on endoscopic and clinical outcomes in patients with active Crohn’s disease conducted by Celgene Corporation.
A Phase III Randomized, Double Blind, Placebo-controlled, Multicenter, Parallel Group Study to Assess the Efficacy and Safety of Fixed-dose Combination RHB-104 in subjects with moderately to severely active Crohn's disease conducted by RedHill Biopharma.
Deciding whether to participate in a clinical trial is an important personal decision, best made with a full understanding of the drug development process and a participant's role.
Take Steps Team Challenge
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