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Wednesday, March 20, 2013

Take the Challenge for Timmy Here is his Story

Here is an inspirational story about a little boy by the name of Timmy who was diagnose with Crohn's disease at the tender age of 5 years old.So PLEASE take the CHALLENGE on behalf of Timmy and the millions of others diagnose with Crohn's disease and Ulcerative Colitis. Timmy was diagnosed with Crohn’s disease in 2009 at the age of five. His diagnosis was not an easy one—he started having random fevers, stomach aches, and joint pain at the age of three. Sometimes his joint pain was so severe he could not run or play. Timmy’s growth was also affected. After a long road of hospital visits and tests, Timmy was diagnosed with Crohn’s disease. In the three years since his diagnosis, he has been hospitalized multiple times, had two major surgeries (removing two feet of his small intestine), and has tried countless medications. Timmy does his best to be like other eight-year-olds—he loves Legos and riding his bike when he can. But he and his family live with uncertainty every day, never knowing when there will be another trip to the hospital. In spite of it all, they remain hopeful that his disease will come under control and there will someday be cures. Timmy is the national honored hero for Team Challenge, CCFA’s endurance training and fundraising program. You can help—join Team Challenge and offer kids like Timmy a future free from Crohn’s and colitis when you join Team Challenge here. Team Challenge offers a custom weekly training program to get you ready for a destination race while raising vital funds for CCFA’s research, education, and support programs. Information meetings are taking place right now: we’re training for upcoming races in Virginia, Chicago, Napa, and Hawaii! When you join Team Challenge, you’ll not only find new strength inside yourself, but you’ll also offer kids like Timmy a future free from Crohn’s and colitis. Find your Team today!” PLEASE visit www.ccfa.org

Tuesday, March 19, 2013

Take the Challenge for Timmy

In the March 2013 issue of CCFA we are sharing our stories and taking our FIGHT to Congress. Take the Challenge for Timmy Timmy, the 'honored hero' for Team Challenge Timmy was diagnosed with Crohn's disease at the age of five. It hasn't been easy. Since his diagnosis, Timmy has done his best to be like other kids – he loves Legos and riding his bike when he can – but he and his family live with uncertainty every day, never knowing when there will be another trip to the hospital. In spite of it all, they remain hopeful for a cure someday. Timmy is the national honored hero for Team Challenge, CCFA's endurance training and fundraising program. You can help – when you join Team Challenge, you'll bring kids like Timmy a step closer to a future free from Crohn's and colitis. Read Timmy's story and find out how you can help. read more Questions about nutrition and IBD? We can help. One of the most popular topics among IBD patients is nutrition. What should you be eating? What about social gatherings and holidays? The free webcast "Food for Thought: Nutrition & IBD" (Wednesday April 10, 1:00-2:15pm ET) will provide up-to-date information on the complex relationship between nutrition and IBD management, and empower patients to make healthy choices to ensure adequate nutrition and wellness throughout the year. It will be co-presented by Millie Long, MD and Lisa Cimperman, RD. Pediatric IBD specialist Joel Rosh, MD will also participate in the Q&A. Learn more and register today! read more Our Advocacy Toolkit is now available! Washington DC CCFA is excited to announce the launch of our Advocacy Toolkit, a must-read for anyone looking to make their voice heard in Congress. The Toolkit contains important information about advocating for legislative action for IBD patients and their families, as well as helpful resources to guide participation. Do you have just a few minutes to make a difference or do you have more time on your hands? There is something for everyone! Raising awareness about Crohn's disease and ulcerative colitis is as easy as writing a letter or making a phone call to share your story. If you're a patient, a family member, an advocate or just interested in supporting the rights of IBD patients, get started here! http://www.ccfa.org