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Friday, August 23, 2013

Kids & Teens: Our New Partners for Cures

Here is the August Newsletter from CCFA. Have you ever wished you could do something more to find treatments and cures for IBD? I know sometimes I feel like there's only so much one person can do. But I have some good news! For a limited time, you can do something more. Thanks to a generous donor, every gift we receive through September 15th will be matched, dollar for dollar, up to a total of $50,000. That means your gift will automatically double! So you'll be doing twice as much in the fight to find cures for Crohn's disease and ulcerative colitis. Working together, we have the power to create a future free from IBD. I hope you'll take advantage of this wonderful opportunity with a special donation to CCFA today. Personal Story: Marc Gillman Marc Gillman and family For Marc Gillman, what started as a dare turned into a life-changing opportunity to help people suffering with IBD. This week, Marc and his brother-in-law Brian, who has Crohn's disease, will take a 17-plus-hour flight from Newark, NJ to Nairobi, Africa. There, they will climb Mount Kilimanjaro – the world's highest free-standing mountain. And they're doing it for IBD treatments and cures! So how does one prepare to climb for the tallest mountain in the world? Read on to find out how Marc and Brian are training and what inspired them to do this incredible feat for the millions of Americans living with IBD. read more Join our Pain Management Webcast on September 17 Pain in IBD webcast One of the most common symptoms among people with Crohn’s disease and ulcerative colitis is pain, but there is limited research on pain therapy in this population. Pain in IBD: Causes & Treatment Options will provide patients and loved ones with information on the causes of pain in IBD and the various therapies that may provide relief. Presented by pain and IBD expert Eva Szigethy, MD, PhD, the webcast will also discuss the overlap between IBD and IBS, and how research on IBS may inform treatment of pain in IBD. Space is limited – register today! Kids & Teens: Our New Partners for Cures CCFA Partners Kids & Teens is a groundbreaking new research initiative designed to improve the quality of life for children with IBD. Following the success of CCFA Partners – which has more than 12,000 adults with IBD enrolled – we're now expanding our study to include the pediatric population. Children of all ages are invited to join this long-term research project focusing on the aspects of IBD that are most important to patients and their parents, including health behaviors, disease symptoms and quality of life. Learn more about the free, comprehensive internet-based study and enroll your child today! AUGUST 2013 ISSUE college student ATTENTION COLLEGE STUDENTS Are you an exceptional and highly-motivated student leader in your freshman or sophomore of college? New member applications for CCFA's National Council of College Leaders are available now! DOUBLE DOWN ON DONATIONS FOR IBD CURES Until September 15th, your generous donation to help fund crucial research and one-of-a-kind programs for IBD patients will be matched, dollar for dollar. Double your impact today! Take Steps group FALL WALK SEASON If you have never experienced a Take Steps Walk before, they provide a unique sense of community, solidarity and celebration. If you walked with us this spring, thank you for your participation! If you weren't able to join us, there is still time to join a fall walk near you. IBD Clinical Trials & Other Studies CCFA provides a comprehensive database of IBD medical studies and clinical trials. Some of the recently added studies include: • MEthotrexate Response in Treatment of Ulcerative Colitis study being conducted by CCFA Clinical Alliance Members. • Assessing Chronically Ill Youth's Access to Education online study being conducted by Stanford University Deciding whether to participate in a clinical trial is an important personal decision, best made with a full understanding of the drug development process and a participant's role.