Reporting on What is going on in the World. I'm a Crohn's Advocate and currently a Volunteer for the Crohn's and Colitis Foundation Of America San Diego and Desert Area Chapter.
Monday, October 26, 2015
Thank you for rallying last month!
Here is our CCFA October 2015 Newsletter on ALL things Crohn's related. A Letter from the President & CEO As you know, advocacy is an important part of our mission – so I can't thank you enough for taking action last month.
As a result of the September Action Alert, more than 844 letters were sent to legislators asking them to express support for medical research on IBD. Your advocacy came at a critical time for legislators to intervene in fiscal year 2016 spending negotiations. Thank you for standing up for the IBD community!
What's next? Ask your House Representative to join the Congressional Crohn's and Colitis Caucus and support IBD policy priorities. If your Representative is already a member, thank them for their crucial support. You can also reach out to your local CCFA chapter to work with other advocates and even organize visits to local legislators. Remember: there is strength in numbers – make your voice heard!
Richard J. Geswell, CCFA President and CEO
Thank you again,
President & CEO
Change Your Life and the Lives of Others
“It was so much more than I ever imagined it could be. It wasn't a training group, it was a support group.” – Missy, Team Challenge 2015 Alumni
Are you looking for a support system? A way to fight back? Want to help someone you love affected by IBD? Then Team Challenge is a great place to start. Click here to learn how Mary and her daughter Jessica are conquering Crohn's through Team Challenge, and join us as we take on the Rock 'n' Roll New Orleans Marathon, Half Marathon, and 10k or the magical Walt Disney World Half Marathon. Hurry – teams are forming now!
Learn more ►
Spin4™ Crohn's and Colitis Cures During Awareness Week
Take action by joining CCFA's newest event during Crohn's & Colitis Awareness Week. Spin4 crohn's and colitis cures™ is an exciting high-energy indoor cycling event taking place on December 5th. Join us at studios in Atlanta, Chicago, Los Angeles, Maryland/DC, New York, Pittsburgh, San Diego, San Francisco and Seattle, or “Ride Where You Live” and create your own event with friends and family. Visit www.spin4.org to get started. Don’t forget to follow us on Facebook.
Act now ►
Help fund critical IBD research
Your generosity helps us advocate for IBD research in Washington, fund groundbreaking studies, and provide compassionate support to patients nationwide.
Calling All College Leaders
If you'd still like to apply to the National Council of College Leaders, you're in luck! The deadline has been extended to October 28th. This is a great opportunity for students to take a leadership role in building awareness about IBD while also building their resume. Current Freshmen and Sophomores are welcome to apply. Download the application from CCFA's Campus Connection website today.
Need Better Health Insurance?
Getting access to affordable healthcare can be challenging for those who need it most. However, recent reform is helping people find quality coverage all in one place. In The Health Insurance Marketplace, you can see all your options, compare plans, and submit an application. Learn more or contact our IBD Help Center at firstname.lastname@example.org.
Upcoming Webcast: Understanding IBD Treatment Options
Understanding your disease and its treatments is an important way to participate as a member of your healthcare team. Join us on October 29 for a discussion of current treatment options, special considerations and risks, and monitoring your treatment and communicating with your healthcare team.
Sign up today! ►
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IBD Clinical Trials and Other Studies
CCFA provides a comprehensive database of studies, clinical trials and other research on Crohn's disease and ulcerative colitis. Some of the recently added studies include:
A Multicenter, Randomized, Double-Blind, Placebo-Controlled Study of investigational product for the induction of symptomatic and endoscopic remission in subjects with moderately to severely active Crohn's disease who have inadequately responded to or are intolerant to anti-TNF therapy by AbbVie
Genetics of Inflammatory Bowel Disease (IBD) by Icahn School of Medicine at Mount Sinai
Sex Differences in Statural Growth in pediatric Crohn's Disease, sponsored by Weill Cornell Medical College
Deciding whether to participate in a clinical trial is an important personal decision, best made with a full understanding of the drug development process and a participant's role.
Take Steps Team Challenge
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Crohn's and Colitis Foundation of America
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www.ccfa.org | 800-932-2423
Talk with an IBD Information Specialist at
888.My.Gut.Pain | 888-694-8872