Reporting on What is going on in the World. I'm a Crohn's Advocate and currently a Volunteer for the Crohn's and Colitis Foundation Of America San Diego and Desert Area Chapter.
Saturday, April 25, 2015
Celebrate World IBD Day with us on May 19!
Here is our April issue of CCFA Newsletter Providing Hope and Inspiring Action | CCFA
APRIL 2015 ISSUE Letter from our President & CEO CCFA has proactively reached out to the Centers for Disease Control and Prevention (CDC) about their recent Tips anti-smoking ad campaign and how they are inaccurately portraying ostomies. We have expressed our concerns and issues with the intent that they will reconsider these ads. We are also working in partnership with United Ostomy Associations of America (UOAA) and others to address this issue. We will keep you apprised of our progress.
Additionally, we want to remind you that May 19 is annual World IBD Day. This year, more than 40 countries across the globe will join together to raise awareness about Crohn's disease and ulcerative colitis. Please visit World IBD Events to learn how you can get involved.
Bridgestone has once again pledged to help raise money for IBD. Throughout April, Bridgestone customers can round up their transactions to the nearest dollar to help fund CCFA's programs and research. Tell your friends and family to head to Bridgestone and take advantage of this special opportunity.
Richard J. Geswell, CCFA President and CEO
Richard J. Geswell
Richard J. Geswell
President & CEO
Walking across the USA for a Cure
Scott Star was 15 years old when he was diagnosed with Crohn's disease, but he kept it a secret from his peers until his college years. Now 24, Scott is no longer embarrassed about his condition – or quiet. He has embarked on an amazing journey: On February 27th, he began a six-month expedition with his German friend, Matthias. Together, they're walking from Delaware to California while raising money for CCFA. To learn more, visit Scott's fundraising page, or follow his journey on www.klimawalking.com and Facebook.
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Create a Video for World IBD Day
Worldwide, 5 million people live with IBD. On May 19, more than 40 countries will join together in honor of World IBD Day. This year's campaign, "United We Stand," encourages anyone affected by the disease – patients, caregivers, gastroenterologists, nurses, family, friends – to submit a 20-second YouTube video sharing their story, and we want you to get involved! Just include your name, city and country, how IBD has impacted your life, and end with the message "United We Stand in the Fight Against IBD." For social media, make sure to use #UnitedWeStand2015. Learn more about how you can help raise awareness for World IBD Day!
Will you help us find a cure?
Your support helps us bring comfort to people with IBD – and gets us closer to cures. Please donate today!
Limited Time Only: Race IRONMAN for FREE
We're offering 25 VIP race entries to sold-out IRONMAN Chattanooga this September and 5 other excellent IRONMAN events. Use code FREE at checkout. Conquer the ultimate endurance event and help cure IBD!
Complementary and Alternative Therapies Webinar
Join us on Tuesday, May 12 at 2PM ET for a webcast on complementary and alternative medicine (CAM) used together with conventional treatments in IBD. Don't miss this program: Sign up today!
Resources: Managing IBD Flares
When you have IBD, you’ll likely experience flare-ups: times when symptoms become active. The updated brochure Managing Flares and Other IBD Symptoms (PDF) and the available flare tracker help you manage your life with this unpredictable disease. Download or order the brochure online, or contact the IBD Help Center at firstname.lastname@example.org.
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Facebook Chat: IBD Extra-intestinal Complications
Our next Facebook Live Chat is on Wednesday, April 22 at 6pm ET. Host Dr. Christina Ha, MD from UCLA Medical Center, discusses Managing IBD Extra-intestinal complications. Join the chat at facebook.com/ccfafb.
Summer Is Right Around The Corner!
Camp Oasis, CCFA's co-ed residential summer camp, is a fun environment where children with IBD learn, play, and meet others just like them. Visit our website for more information and to apply!
Interested in serving as a Camp Oasis counselor or Medical Team member this summer? Check out our volunteer page for more information.
APPLY AS CAMPER ►
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IBD Clinical Trials and Other Studies
CCFA provides a comprehensive database of studies, clinical trials and other research on Crohn's disease and ulcerative colitis. Some of the recently added studies include:
A Phase III Randomized, Double Blind, Placebo-controlled, Multicenter, Parallel Group Study to Assess the Efficacy and Safety of Fixed-dose Combination RHB-104 in subjects with moderately to severely active Crohn's disease conducted by RedHill Biopharma.
An Open-Label, Phase I/II Pilot Study to Assess the Safety and Tolerability of Bone Marrow Stromal Cell Infusion for the treatment of moderate-to-severe inflammatory bowel disease conducted by the National Institutes of Health.
Deciding whether to participate in a clinical trial is an important personal decision, best made with a full understanding of the drug development process and a participant's role.
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