Reporting on What is going on in the World. I'm a Crohn's Advocate and currently a Volunteer for the Crohn's and Colitis Foundation Of America San Diego and Desert Area Chapter.
Friday, March 28, 2014
Pathways to Cures
This is What's going on in this Months CCFA Newsletter.
Letter from Rick Geswell, CCFA President & CEO
Rick Geswell, CCFA President and CEO
Did you know that there's a team of world-renowned researchers focused on finding treatments and cures to IBD through genetics? Watch this fascinating video and learn more about CCFA's Genetics Initiative!
I have more exciting news. For the third year in a row, I am honored to announce that Charity Navigator has awarded CCFA the best possible rating (4 stars) for good governance, sound fiscal management and commitment to accountability and transparency. This prestigious distinction reflects our commitment to remaining true to our mission to treat and find cures for Crohn's disease and ulcerative colitis while also improving the quality of life of children and adults affected by these diseases.
Game-changing IBD Genetics Research
Launched in 2012, the CCFA Genetics Initiative is a collaboration of the brightest minds in IBD-related genetics research. The Initiative focuses on "genetic pathways" – groups of genes associated with IBD that act together in the body – and whether these pathways can be targeted by therapeutic drugs. With an enhanced understanding of the connection between IBD and genetics, we're making huge strides toward new patient treatments and cures for Crohn's disease and ulcerative colitis. Watch the video to learn more.
Get Fit, Make Friends, Change Lives!
Team Challenge raises both awareness and funds for cures for Crohn's disease and ulcerative colitis. This season, we're offering three great new events: the United Healthcare Jamestown Half Marathon, the Bass Lake Classic Triathlon and TriRock Philadelphia. We're also offering our summer staples, the Michelob ULTRA Chicago 13.1 Marathon, the Kona Marathon & Half Marathon, and our signature summer event, the sold-out Napa to Sonoma Wine Country Half Marathon.
Join us this summer! Information meetings are happening NOW, but time is running out – register today!
I'll Be Determined
The I'll Be Determined website is an online resource designed to educate and empower patients to manage IBD as part of their lifestyle. Users can navigate through five pathways – Treatment, Diet, Complications, Quality of Life, and Newly Diagnosed – and benefit from a wide range of interactive educational content. Features include engaging questions, games and video-based tutorials. Users can also view and share how they are taking charge of their IBD on THE WALL. Over 63,000 unique visitors accessed the site in 2013 – join them today!