Tuesday, June 18, 2013

Inspiration in unexpected places

Here is the June News Letter from CCFA.
Letter from Rick Geswell, CCFA President Rick Geswell I am pleased to share two exciting updates this month. First, we received the highest rating in the most recently published issue of the Better Business Bureau Wise Giving Guide. The Alliance helps donors make informed giving decisions and promotes high standards of conduct among organizations that solicit contributions from the public. You can see our full profile here. Second, our IBD Day on the Hill was an overwhelming success! In addition to 18 teams making over 150 visits, the Crohn's & Colitis Caucus hosted a Congressional briefing highlighting specialty tier legislation which had more than 100 attendees. Our first virtual IBD Day on the Hill was also a success with more than 12,000 views on Faceboook and 700 patient stories shared. Inspiration in Unexpected Places Jazz Jazz was diagnosed with severe Crohn's disease at age three. His father Denis says that through the medications, hospital visits, tests and scans, Jazz remained positive, strong and determined. Over the next few years, Jazz has been a comfort and inspiration to everyone who knows him – especially his father's Team Challenge teammates in Las Vegas. Now six, Jazz is even more determined to help find cures for this disease. He believes that the cures are out there... and that together, we'll find it. Find out more about Team Challenge and how you can help make a difference through this amazing program. Read more of Jazz's inspiring story. read more Managing the Costs of Your IBD Care webcast Join our Financial Management Webcast on July 23! The cost of care in IBD is significant, and many families struggle with expenses. Our upcoming webcast on July 23, 3:00-4:00pm ET will provide patients and loved ones with tips for managing healthcare costs. We will discuss several programs that can help cover the cost of treatment for both uninsured and underinsured patients, and speakers will also discuss disability coverage in IBD. Space is limited – register today! read more Round Up for Treatments and Cures Not only was Gary Garfield, President and CEO of Bridgestone Americas, Inc., the 2013 Take Steps National Chair, but during the months of July and August, Bridgestone America's and their affiliated stores are supporting CCFA with a round-up program. Please show your support by taking care of your car this summer.

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