Reporting on What is going on in the World. I'm a Crohn's Advocate and currently a Volunteer for the Crohn's and Colitis Foundation Of America San Diego and Desert Area Chapter.
Wednesday, June 21, 2017
A moment to say thank you
Here is our June 2017 CCFA Newsletter Uniting to Care and Cure!
JUNE 2017 ISSUE
Letter from our President & CEO
I wanted to take a moment to say thank you to our members, donors, and community members. As you know, Crohn’s and colitis come with not only debilitating physical pain but may also affect a patient’s mental health — causing anxiety, depression, guilt, and more.
Thanks to you, the Crohn’s & Colitis Foundation has nurtured a community of patients and their loved ones so that no one has to face these diseases alone. By visiting our website, patients can find more than 38 local chapters that hold more than 200 support groups across the country, where patients and family members can connect to others living with these diseases. And if patients prefer peer-to-peer support, they can find that too, as well as a 24/7 online community.
We are committed to providing places where people can share their stories, seek emotional support, find answers to their questions, and connect with a community that shares their unique challenges. And you make that possible.
President & CEO
Be Part of Take Steps!
Take Steps to end Crohn's & Colitis!
"Being a part of Take Steps creates the best kind of awareness about these terrible diseases. It is a great outlet for the people who are directly affected by Crohn’s disease and ulcerative colitis. I encourage anyone that can to be part of one. There is something about all of us walking together for the same great purpose, shared love, and being loud and proud that is so uplifting!" — Allison, Crohn’s disease patient and Take Steps participant
When you join Take Steps, you become part of a supportive community that helps the Crohn’s & Colitis Foundation fund research into better treatments and ultimately cures for IBD. Register your team today for an upcoming Take Steps walk and get started by making a personal donation to the cause. You can make a difference!
Thank you to AbbVie for their commitment as a 2017 Take Steps national partner. AbbVie’s longstanding and continued partnership helps support our critical research activities.
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Choose Your Event, Set Your Own Goal!
Choose your event, set your goal
Team Challenge is excited to announce a new option in the race against Crohn’s and colitis — Race in Orange. Whether you love to run/walk a 5k, get dirty in a mud run, cruise in a cycle event, or try a triathlon… you can now help fight IBD — with no fundraising commitment!
Set your own goal. The more you raise, the more rewards you receive. But you’re not on your own — you’ll receive tons of fundraising support and templates to make your fundraising easy AND FUN!
Click here to learn more, and have a local manager contact you to take the first step!
LEARN MORE ►
this is why we spin4 crohn’s and colitis cures™
IBD forced Liz to put her goals and dreams on hold when she was just 21-years-old.
IBD forced Liz to put her goals and dreams on hold when she was just 21-years-old. She has fought through pain, weight loss, medication changes, and surgery in an effort to find remission. Her passion for making Crohn’s and colitis things of the past led her to the spin4 crohn’s & colitis cures™ movement. Click here to read about her incredible journey with IBD, and learn why this event means so much to her. Join the movement and #partyonabike with us this fall to help end IBD!
LEARN MORE ►
Have you joined yet?
Become a member of the Crohn’s & Colitis Foundation today, and be part of the community that’s uniting to care and cure.
IBD does not need to get in the way of your vacation plans.
Travel Tips for Summer Vacationing
IBD does not need to get in the way of your vacation plans. Planning ahead and preparing for unexpected events are critical to ensuring a smooth trip. To help you prepare for your summer vacation, we have put together some valuable tips: Traveling with IBD. Additionally, patients can take some of the worries out of air travel by reading our Air Travel Frequently Asked Questions.
For further information and resources, please contact the IBD Help Center at 888-694-8872 or email@example.com.
Join our Facebook chat on June 21.
June Facebook Chat: IBD Treatment Approaches
There are a lot of factors that go into decisions around how to treat each individual case of IBD. Some doctors may use a “step up” treatment approach, beginning treatment with aminosalicylates and progressing up to biologic therapies, while other doctors may use a “top down” approach, beginning with biologics. Regardless of which is used, the ultimate goal is inducing and maintaining remission in patients with Crohn’s disease and ulcerative colitis where there is an absence of symptoms.
Join the Foundation on Wednesday, June 21 at 5 p.m. EST for a Facebook Live video chat to discuss different IBD approaches with Dr. Ryan Ungaro of the Icahn School of Medicine at Mount Sinai. Dr. Ungaro will discuss “step up” and “top down” approaches along with emerging therapies on the horizon and new treatment approaches for treating Crohn’s and colitis. The chat will take place live at https://www.facebook.com/ccfafb.
Submit your questions before the chat to firstname.lastname@example.org.
Join our Twitter chat on June 29.
June Twitter Chat: Surviving the Summer with IBD
The “lazy, hazy, crazy days of summer” are upon us, and with warm weather comes some concerns for IBD patients. Join Dr. Neil Nandi (@NandiFITWITMD) and ulcerative colitis patient Laura Scaviola (@MangiaPaleo) for a live Twitter chat on June 29 from 8-9 p.m. EST to chat about surviving summer with IBD — from barbecues to fun in the sun to travel, and everything in between.
Tweet your questions during the chat using the hashtag #IBDchat to participate!
The Foundation provides a comprehensive database of studies, clinical trials, and other research opportunities on Crohn's disease and ulcerative colitis. Here are a few of the recently added studies:
(Genentech Hickory) Hickory (GA28950) Phase III, randomized, double-blind comparison between etrolizumab and placebo to evaluate efficacy and safety of etrolizumab in patients with active ulcerative colitis who have less than adequate response to TNF inhibitors.
(Genentech Bergamot) A Phase III, Randomized, Double-Blind, Placebo-Controlled, Multicenter Study to Evaluate the Efficacy and Safety of Etrolizumab as an Induction and Maintenance Treatment for Patients with Moderately to Severely Active Crohn's Disease (Bergamot GA29144)
(Gilead — 3898) Combined Phase 2b/3, Double-blind, Randomized, Placebo-Controlled Studies Evaluating the Efficacy and Safety of Filgotinib in the Induction and Maintenance of Remission in Subjects with Moderately to Severely Active Ulcerative Colitis
(Gilead — 3899) A Long-Term Extension Study to Evaluate the Safety of Filgotinib in Subjects with Ulcerative Colitis
(Gilead — 4016) A Phase 2, Double-Blind, Randomized, Placebo-Controlled Study Evaluating the Efficacy and Safety of Filgotinib in the Treatment of Perianal Fistulizing Crohn's Disease
Deciding whether to participate in a clinical trial is an important personal decision, best made with a full understanding of the drug development process and a participant's role.
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www.crohnscolitisfoundation.org | 800-932-2423
Talk with an IBD Information Specialist at 888.My.Gut.Pain | 888-694-8872
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