Reporting on What is going on in the World. I'm a Crohn's Advocate and currently a Volunteer for the Crohn's and Colitis Foundation Of America San Diego and Desert Area Chapter.
Wednesday, September 28, 2016
See Your Support in Action
Here is September CCFA Newsletter. Letter from our President & CEO
I have some wonderful news! Thanks to our amazing members and supporters, we raised more than $160,000 during this summer's Members Match Challenge.
These extra funds will deliver a much-needed boost to everything we're working so passionately on at CCFA—including our Microbiome, Genetics, Pediatric Research, CCFA Partners, IBD Qorus™, and IBD Plexus® initiatives.
To learn more about these programs, please take a look at our latest annual report. It's a great way to see all the progress we’ve made in the past year—and your incredible support in action—as we continue to work together toward better treatments and cures for IBD.
Thank you again,
President & CEO
Change Your Life & the Lives of Others!
Susan is both the mother of an IBD patient and a patient herself—but that hasn’t stopped her from completing four Team Challenge events. When asked about the effect IBD has had on her family, Susan says, "Crohn’s disease continually hangs over our head. When might the next flare be? What triggers it? What side effects will I have to suffer because of the medicines I have to take? It’s like walking on eggshells… but I will walk on 13.1 miles of eggshells every year until there's a cure."
Read Susan's inspirational story and see how Team Challenge is transforming lives on the way to cures!
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September Rally for Medical Research
On September 22, CCFA will join a broad coalition of groups at the Rally for Medical Research in Washington, D.C. We will be advocating for robust federal funding for the National Institutes of Health (NIH)—the nation's largest biomedical research government agency, which supports nearly $130 million annually for research on Crohn’s disease and ulcerative colitis.
This research portfolio is essential for advancing the science on IBD, improving the quality of life for patients, and ultimately finding cures. Help us Rally for Medical Research! Email your legislators through our Rally for Medical Research Action Alert and participate in our social media Thunderclap.
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Your tax-deductible gift will fund critical research on Crohn's and ulcerative colitis—and provide support to people suffering from these debilitating diseases.
Together, We have the #power2cure!
Party on a bike this fall with spin4 crohn's & colitis cures—a high-energy indoor cycling event that raises funds for research, awareness, and patient services. Form a team, or take on the entire ride yourself. Learn more on Facebook and/or have a team member contact you!
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You Can Prevent Colorectal Cancer
It's important to know that colorectal cancer is highly treatable if caught soon enough—so early detection is crucial. Hear our experts discuss the procedures that can help detect colorectal cancer, as well as risks for patients and ways to reduce them.
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World Ostomy Day Twitter Chat
Join Meg of the Front Butt You Tuber for a World Ostomy Day Twitter Chat on September 30 from 1-2 p.m. EST. We'll be discussing all things ostomy with other patients and healthcare professionals. To join, follow #OstomyChat on Twitter and tweet questions to @ccfa and @FrontButtYouTR.
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CCFA provides a comprehensive database of studies, clinical trials, and other research on Crohn's disease and ulcerative colitis. Here are two of the recently added studies:
A Phase 2a, Multicenter, Single Arm, Open-Label, Two-Stage, Study to Evaluate the Efficacy, Safety, Tolerability and Pharmacokinetics of PF-06480605 in Patients with Moderate to Severe Ulcerative Colitis (Tuscany Study B7541002). All participants in the study will receive the investigational drug with no placebo.
A Multiple Dose Study to Evaluate the Safety, Tolerability and Microbiome Dynamics of SER-287 in Subjects with Mild-to-Moderate Ulcerative Colitis.This Phase 1b clinical study will also attempt to identify preliminary signs of efficacy in patients with UC.
Deciding whether to participate in a clinical trial is an important personal decision, best made with a full understanding of the drug development process and a participant's role.
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