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Wednesday, July 20, 2016

Let's Make TWICE the Impact this Summer

Here is our July 2016 Issue of CCFA Newsletter. Letter from our President & CEO I have some great news! Our Members Match is back this summer—thanks to some very generous donors. The Finkelstein Family has graciously made an $80,000 gift to CCFA and challenged us to match it by September 15th. As you know, more effective therapies and cures for IBD are on the horizon, and $160,000 would give our research initiatives a major boost. So please consider making a Members Match gift today. This is our chance to have TWICE the impact on defeating IBD this summer. Thank you in advance for your support, Michael Osso President & CEO Twins Taking Steps! It is said that the bond between twins is unlike any other sibling bond. For Jamie Mendelsohn and Jill Theisen, it's no different. The 39-year-old twins shared everything as children and now, as adults, they share another major aspect of their lives: IBD. Jamie and Jill were both diagnosed with ulcerative colitis in their 20s—and today, after a long journey filled with hospitalizations, surgeries, and more, they are involved in raising awareness and funds for CCFA. The twins began fundraising for Take Steps six years ago. Since their first walk, they've nearly tripled their fundraising goal. Read their inspiring story here. READ MORE ► Join the Movement—Registration is Now Open! We are excited to announce that spin4 crohn's & colitis cures is expanding to 18 cities across the country this fall, along with an option to Ride Where You Live! spin4 crohn's & colitis cures is an exciting, high energy, indoor cycling event that raises funds for research, awareness, and patient services. Form a team of up to four people per bike, and participate in a two-hour indoor cycling relay—or take on the entire ride yourself. Click here to learn more and have one of our team members contact you! LEARN MORE ► Double Your Impact This Summer Join our Members Match today—and help us raise TWICE the funds to fight IBD. Walk with Us this Fall! We already have over 50 walks planned across the U.S. this fall. Connect with other families while raising critical funds for research and support programs. Cures are within our reach—let's Take Steps together to get there! JOIN TODAY ► Check Out Our Educational Programs CCFA's half-day and evening educational programs provide a unique opportunity to connect with other IBD patients and caregivers, as well as learn from medical experts in the field. Visit your local chapter's page to learn about upcoming programs in your area. LEARN MORE ► Traveling with IBD Summer is prime travel time! Don't avoid a dream vacation because of Crohn's disease or ulcerative colitis. Whether you're traveling abroad or here in the States, these tips will come in handy. READ MORE ► Visit Your Legislators this August For Members of Congress, August is an extended period of time when they will be back in their home states meeting with constituents. During this time, you can meet with them in person to reiterate your support for IBD medical research and awareness. Join us for an informational webinar on July 25 at 8 p.m. EST to learn how to request a local meeting and more. GET INVOLVED ► CCFA provides a comprehensive database of studies, clinical trials, and other research on Crohn's disease and ulcerative colitis. Here is one of the recently added studies: An Observational Study on Pregnancy and Autoimmune/Inflammatory Diseases, for pregnant women ages 18 and older with Crohn’s or ulcerative colitis Deciding whether to participate in a clinical trial is an important personal decision, best made with a full understanding of the drug development process and a participant's role. 7​33 Th​ird Av​en​ue, Sui​te 51​0, Ne​w Y​ork,​ N​Y 10​01​7 www.ccfa.org | 8​00-​93​2-​2​423 Talk with an I​BD Info​rmation Specialist at 88​8.M​y.Gu​t.P​ain | 8​88-​69​4-8​87​2

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