Friday, June 24, 2016

Become a CCFA Partner This Summer

Here is the June Issue of CCFA Newsletter Of All the things that are taking place within the Organization Letter from our President & CEO I hope your summer is off to a fantastic start! I'd like to use this month's note to remind you about our CCFA Partners initiative. If you haven't already, I encourage all of our patients to enroll in this important research project. All you need to do is complete an online survey every six months, and you will be making a valuable contribution towards finding cures. Find out more at Thank you, Michael Osso President & CEO May Madness May was an incredibly busy month for CCFA! First, on May 12, more than 100 patients and their loved ones visited congressional offices as part of IBD Day on the Hill—urging legislators to support the Patients' Access to Treatments Act, which would help limit medication costs. Read our June action alert for more information. Then, on May 19, over 200 CCFA staff members helped raise awareness about IBD and gave back to the community by participating in World IBD Day. These activities also reached 1.2 million people online through Facebook, Twitter, Instagram, and more. Check out our photo album for highlights! READ MORE ► IBD and Fatherhood Actor Benjamin King is known for his role as Pete Rooney, the father on Disney Channel's show "Liv and Maddie"—but in real life, he's also an IBD patient and father to two beautiful daughters. King was diagnosed with proctitis when he was 15-years-old and, in 1996, he was diagnosed with ulcerative colitis. After having an ileostomy for six months, his diagnosis was then changed to Crohn's disease in 2009. In honor of Father's Day, we spoke with King about his disease journey, his children, and how having Crohn's has affected him as a father. Read his whole story here. READ MORE ► Donate to CCFA Your gift today will fund critical research on Crohn's and colitis—and provide support to people suffering from these debilitating diseases. Race in Orange for IBD Cures Whether you want to walk a 5k or do a mud run, you can now help support CCFA's mission with no fundraising commitment! Set your own goal—and watch the rewards roll in. Take the first step TODAY. REGISTER TODAY ► Learn About Biosimilars While not yet available in the U.S., the FDA recently approved a biosimilar (a "similar" but not identical copy to another biologic therapy) for the treatment of Crohn's and colitis. Watch this webinar to learn more. WATCH NOW ► Summer Eating Tips When the temperature goes up, the barbeque grills come out! Here are seven ways to manage your diet while enjoying a fun summertime activity. LEARN MORE ► CCFA provides a comprehensive database of studies, clinical trials and other research on Crohn's disease and ulcerative colitis. Below are two of the recently added studies: A Phase 2, Multicenter, Randomized, Double-Blind, Parallel, Placebo-Controlled Study of LY3074828, an Anti-IL-23 Humanized Antibody, in Patients with Moderate-to-Severe Ulcerative Colitis A Phase 1 Study of Autologous Mesenchymal Stem Cells in the Treatment of Perianal Fistulizing Crohn's disease Deciding whether to participate in a clinical trial is an important personal decision, best made with a full understanding of the drug development process and a participant's role. 7​33 Th​ird Av​en​ue, Sui​te 51​0, Ne​w Y​ork,​ N​Y 10​01​7 | 8​00-​93​2-​2​423 Talk with an I​BD Info​rmation Specialist at 88​8.M​y.Gu​t.P​ain | 8​88-​69​4-8​87​2

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