Reporting on What is going on in the World. I'm a Crohn's Advocate and currently a Volunteer for the Crohn's and Colitis Foundation Of America San Diego and Desert Area Chapter.
Monday, September 28, 2015
Members Match success!
Here is CCFA'S 2015 September Newsletter on ALL the things that are going on at the Crohn's And Colitis Foundation Of America. A Letter From the President & CEO
I want to personally thank everyone who made a donation as part of the Members Match. I am overwhelmed by the amazing response of the CCFA community throughout this entire campaign – and your dedication to finding cures for IBD.
Because of you, we were able to raise over $260,000 – which will enable us to continue funding the most cutting-edge research, increasing awareness about IBD and providing support to people with Crohn's and colitis.
Richard J. Geswell, CCFA President and CEO
President & CEO
Join us for a great new event!
We received so much interest in our new event, spin4 Crohn’s & Colitis Cures, we have expanded it to more cities! Spin4 will be in Atlanta, Chicago, Los Angeles, Maryland/DC, New York, Pittsburgh, San Diego, San Francisco and Seattle on December 5! And, if you are not in those cities, there is also a “ride where you live” option. Spin4 is a great way to raise funds for IBD research. You’ll never go further on a stationary bike!
Learn more ►
Take action for IBD research
Congress is back in session this month, which means it’s time to pass the annual appropriations bills for the next fiscal year. These bills fund federal programs – including IBD research. Thanks to your advocacy and the Crohn's and Colitis Caucus, legislators have proposed IBD research funding in their draft FY16 appropriations bills – so we must encourage them to include the proposed funding in the final bills. Please email your legislators today using the September Alert and tell them why IBD research is important to you.
Act now ►
Camp Oasis thanks you
Camp Oasis enriches the lives of children with IBD by providing them with a safe and supportive camp community. In order to do this, CCFA relies heavily on the commitment and hard work of its volunteers. This year, the Camp Oasis program operated 12 sessions across the country and served 1,105 pediatric patients. A total of 295 cabin counselors and 153 medical staff members came together to ensure these children had an incredible experience. With the Camp Oasis program approaching its 20th year, we owe its success to you – the volunteer. Thank you!
Help fund critical IBD research
Your support helps our scientists continue the groundbreaking research that is making a real difference for people with Crohn’s and colitis. Please make a generous gift to CCFA today.
Upcoming Facebook Live Chat
Join host Dr. Raluca Vrabie of Winthrop University Hospital on Wednesday, September 30th from 5:00–6:00 pm EST for our next Facebook Live Chat, “Healthcare maintenance needs of IBD patients.”
Join us on Facebook ►
Does your child have a 504 Plan?
A 504 Plan spells out the modifications and accommodations that a child with IBD may need to achieve success in school – such as an extra set of textbooks, stop-the-clock testing or in-home tutoring. Contact the IBD Help Center at firstname.lastname@example.org for more information and to obtain a sample 504 Plan letter.
For all your IBD questions
Information Specialists at our IBD Help Center not only respond to patient calls and emails, but are also available via live chat. Specialists can provide disease-specific information and resources on coping, available treatment options, diet and nutrition, financial assistance, insurance, support services and a host of other topics.
Chat live today ►
Walk for cures this fall!
Take Steps for Crohn’s & Colitis provides a fun, festive atmosphere for patients to connect with others in the IBD community and raise money toward cures. We are kicking off our fall season with more than 60 walks across the country.
Find a walk near you ►
Search our resources Find your chapter
IBD Clinical Trials and Other Studies
CCFA provides a comprehensive database of studies, clinical trials and other research on Crohn's disease and ulcerative colitis. Some of the recently added studies include:
A Pilot Study Investigating a Decentralized Approach to Studying Dietary Intervention in Patients with Ulcerative Colitis by Transparency Life Sciences.
CRADLE – A Multicenter Postmarketing Study to Evaluate Breast Milk Transfer in Lactating Mothers Receiving Treatment for Crohn's and Rheumatologic Diseases sponsored by UCB BioSciences, Inc.
CRIB – A Multicenter Postmarketing Study to Evaluate Placental Transfer in Pregnant Women Receiving Treatment for Crohn's and Rheumatologic Diseases sponsored by UCB BioSciences, Inc.
Deciding whether to participate in a clinical trial is an important personal decision, best made with a full understanding of the drug development process and a participant's role.
Take Steps Team Challenge
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www.ccfa.org | 800-932-2423
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