Reporting on What is going on in the World. I'm a Crohn's Advocate and currently a Volunteer for the Crohn's and Colitis Foundation Of America San Diego and Desert Area Chapter.
Monday, July 27, 2015
Welcome Michael Osso: Our Next President & CEO
Here is July CCFA Newsletter of ALL the things that are happening. Letter from our President & CEO
I am honored to introduce Michael Osso, the next President & CEO of the Crohn's & Colitis Foundation of America. Michael has spent his entire professional career in the non-profit sector. As the Foundation's Chief Business Development Officer, he has been instrumental in expanding CCFA's revenue portfolio. Michael's passion for our mission and commitment to the patients we serve, coupled with his proven success and vast experience, make him the ideal person to lead CCFA into the future. I will head into retirement knowing that we have the right leader in place. Congratulations to Michael, and all the best!
Richard J. Geswell, CCFA President and CEO
Richard J. Geswell
Richard J. Geswell
President & CEO
Our Story: A Father-and-Son Journey
Like any Dad, Russ Lessard had coached his son Keegan in sports, and participated with him in many father and son activities – until 2012, when Keegan was diagnosed with Crohn's disease and life was turned upside down for the Lessard family. Once Russ began to understand the complications, reality hit hard. Now, with Keegan turning 16 and thinking about college, Russ looks back on the past years to realize how proud he is of his son's resilience and courage.
Read Russ's full story here ►
Join Team Challenge today!
How far would you go for someone you love? Team Challenge, our premier endurance training program, empowers patients to fight back against IBD, while providing a unique support network for both patients and their friends and families. When you join Team Challenge, you'll receive custom training, free hotel accommodations and race entry, fundraising support, and much more! Run or walk a half marathon or 10K in Las Vegas, New Orleans – or both! Team Challenge is even going to Walt Disney World!
RSVP to learn more ►
Support groundbreaking IBD research
Your gift makes a difference
Your donation supports research for the 1.6 million Americans struggling with Crohn's disease or ulcerative colitis. Give today!
Maintaining Healthy Nutrition in IBD
Disease flares can negatively impact nutrition. Consult your healthcare professional about nutrient deficiencies and check out the brochure: Diet, Nutrition, and Inflammatory Bowel Disease. For further help and information, contact firstname.lastname@example.org
Read the brochure ►
GI Buddy: Disease Management Tool
GI Buddy, CCFA's online disease management tool, allows you to easily track and share with your healthcare team important aspects of your IBD – including your food, symptoms, medication, and overall well-being. Download GI Buddy to your desktop or mobile device here.
Download the app ►
Webcast: Diagnosing and Monitoring IBD
On Wednesday, September 16th, 2015 8-9 PM EST, join medical experts as they discuss the diagnostics and monitoring of IBD, including blood tests, endoscopy, biopsy, imaging, and genetic testing. Learn helpful resources and important questions to ask your healthcare team at this not-to-be-missed webcast.
Register today ►
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IBD Clinical Trials and Other Studies
CCFA provides a comprehensive database of studies, clinical trials and other research on Crohn's disease and ulcerative colitis. Some of the recently added studies include:
A Randomized, Double-blind, Multicenter Study to Explore the Effect of GED-0301 on endoscopic and clinical outcomes in patients with active Crohn's disease conducted by Celgene Corporation.
An Open-Label, Dose-Escalation Phase Ib Study Evaluating the Safety and Efficacy of Oral SA100 in the Treatment of Patients with Mild-to-Moderate Ulcerative Colitis sponsored by Stanford University School of Medicine.
CRADLE – A Multicenter Postmarketing Study to Evaluate Breast Milk Transfer in Lactating Mothers Receiving Treatment for Crohn's and Rheumatologic Diseases sponsored by UCB BioSciences, Inc.
CRIB – A Multicenter Postmarketing Study to Evaluate Placental Transfer in Pregnant Women Receiving Treatment for Crohn's and Rheumatologic Diseases sponsored by UCB BioSciences, Inc.