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Tuesday, August 19, 2014

This is big

Here is this month CCFA Newsletter. Letter from Rick Geswell, CCFA President & CEO Rick Geswell, CCFA President and CEO Great news – we have an incredible $90,000 match challenge! Thanks to the generosity of Mark and Lisa Schneider, whose children both have IBD, every donation made by 9/15 will be doubled up to $90,000. This match opportunity is in honor of all the kids out there who are currently struggling with IBD. Together with the Schneiders, we can raise a total of $180,000 towards critical research for treatments and cures. Help us meet our $90,000 match and improve the lives of everyone living with IBD – make a gift today. Going Inside the Gut Microbiome video Did you know that approximately 90% of the cells on and in your body aren't you? They are the trillions of microscopic bacteria and viruses that make up the human microbiome. The gut's microbiome has an incredibly complex mix of bacteria, viruses and fungi, and CCFA's innovative research has identified a link between these gut bacteria and certain genes in IBD patients. But there's more to be done. Watch the video. IBD and College If you or a family member is headed off to college, you may be concerned about IBD management while at school. We recommend developing a 504 plan with the school's disability office. Though these plans do not require the college to establish guidelines accommodating the student, the regulations prohibit discriminations in admissions and require academic adjustments to be made in order to eliminate or prevent discrimination. Many colleges are willing to establish plans to help students – look into it! Work Up a Sweat for IBD Microbiome video Do you want to win entry into the pinnacle of endurance events with Team Challenge at the 2015 IRONMAN World Championships in Kona, HI? Enter your bid today! AUGUST 2014 ISSUE The Difference between IBD and IBS IBD (Inflammatory Bowel Disease) and IBS (Irritable Bowel Syndrome) both affect the gastrointestinal tract, but they are not the same. IBD is a group of chronic, long-term inflammatory diseases in which the body's own immune system attacks the digestive system. Approximately 1.4 million Americans have IBD. IBS, which affects over 40 million people, is a condition that disturbs the movement of the intestine's muscle lining, causing uncomfortable symptoms. Remember, IBD patients can also suffer from IBS. Learn more. Double Your Support Donate by 9/15 and your gift will be matched, dollar for dollar, up to $90,000. Don't miss your chance to double your support for IBD treatments and cures – make a gift today! Team Challenge Participants Treatments Webcast Archive Now Available! If you missed our live educational webcast last month titled What's Best for Me? Treatment Options in IBD, you can now watch the archived recording of the program at your convenience. Learn more about various IBD treatment options and the information you'll need to make the choice that's best for you. Watch now. Will You Take Steps this Fall? Take Steps is gearing up for our fall season with over 45 walks scheduled across the country. Become a team captain, recruit your friends, family and co-workers and walk for IBD treatments and cures with the people who matter most to you. Please register today! IBD Clinical Trials & Other Studies CCFA provides a comprehensive database of studies, clinical trials and other research on Crohn's disease and ulcerative colitis. One recently added study is: • A Phase III Randomized, Double Blind, Placebo-controlled, Multicenter, Parallel Group Study to Assess the Efficacy and Safety of Fixed-dose Combination RHB-104 in subjects with moderately to severely active Crohn's disease conducted by RedHill Biopharma Deciding whether to participate in a clinical trial is an important personal decision, best made with a full understanding of the drug development process and a participant's role. doctors

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