Reporting on What is going on in the World. I'm a Crohn's Advocate and currently a Volunteer for the Crohn's and Colitis Foundation Of America San Diego and Desert Area Chapter.
Monday, September 30, 2013
We did It- Thanks to you!
In the September issue of CCFA newsletter this is What is going on.
Letter from Rick Geswell, CCFA President & CEO
Rick Geswell, CCFA President and CEO
I have some great news. We challenged you to double your impact in our matching gift campaign, and you rose to the occasion. Together, we reached our goal of raising $50,000, and it was matched! That's $100,000 to fund the groundbreaking research that will enable us to better treat IBD. Thank you!
As you may have already discovered, the 2012 Annual Report is now available online. I encourage you to take a look – this comprehensive report is reader-friendly, organized for easy navigation and full of valuable information about CCFA. I'm proud of the incredible work we do together and so grateful for supporters like you who help make it happen.
Newly Diagnosed? We can help.
Newly Diagnosed IBD patient
Getting diagnosed with a lifelong disease like Crohn's or colitis can be a lot to take in, but we're here to help. Our Patient Starter Kit is filled with information for you and your loved ones about IBD symptoms, treatment options, how best to manage your illness and details about support groups, online resources and a wide array of programs. The more you know about IBD, the more you and your family can be prepared to fight it. Let's get started.
read more
Remembering Lloyd Mayer, MD
Lloyd Mayer, MD
We are sad to share that Dr. Lloyd Mayer, a renowned researcher and CCFA leader, passed away earlier this month. This is a significant loss for us here at CCFA but also for the IBD community at large.
Dr. Mayer brought his vision, dedication, leadership and brilliant mind to CCFA for almost 30 years, holding several key positions and contributing to some of our most significant achievements. His legacy includes research that profoundly shaped the development of highly effective anti-inflammatory drugs for IBD. Read more about what this dedicated teacher, mentor and colleague brought to the fight against IBD.
SEPTEMBER 2013 ISSUE
college students
HEALTHY LIVING TIP
School is back in full swing and CCFA is ready with all the resources college students need to successfully transition back to campus. Visit CCFA Campus Connection today!
IS YOUR GI A MEMBER OF CCFA?
Make sure your GI is getting the support and resources he or she needs to be the doctor you need. CCFA professional members are equipped with the most up-to-date tools and information so they can better serve their patients. Ask your doctor today!
Take Steps group
YOU ASKED, HE ANSWERED!
Watch Dr. Leo Galland, an internationally recognized leader in integrated medicine, answer the questions you asked on Facebook about managing IBD.
Watch the video here.
IBD Clinical Trials & Other Studies
CCFA provides a comprehensive database of IBD medical studies and clinical trials. Some of the recently added studies include:
• A study to evaluate the efficacy and safety of PF-00547659 in subjects with moderate to severe ulcerative colitis being conducted by Pfizer.
• A study to determine the safety and efficacy of intravenous infusion of human placenta-derived cells (PDA-001) for the treatment of Crohn's disease being conducted by Celgene.
• A study to investigate the safety and efficacy of CP-690,550 for induction therapy in subjects with moderate to severe Crohn's disease being conducted by Pfizer.
Deciding whether to participate in a clinical trial is an important personal decision, best made with a full understanding of the drug development process and a participant's role.
doctors
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