Reporting on What is going on in the World. I'm a Crohn's Advocate and currently a Volunteer for the Crohn's and Colitis Foundation Of America San Diego and Desert Area Chapter.
Tuesday, July 16, 2013
Discovering Better Treatments
Here is this month Newsletter of ALL the activities taking place at CCFA.
Letter from Rick Geswell, CCFA President
I know you care about discovering better treatments and cures for IBD – so I know you'll be excited to hear that we have a match! For a limited time, you can help us accomplish twice as much in the search for treatments and cures.
Until September 15th, every gift you make to the Crohn's & Colitis Foundation of America will automatically double. Thanks to a generous donor, every gift will be matched – dollar for dollar – up to a total of $50,000. That means your gift will do twice as much work in the fight to find cures for Crohn's disease and ulcerative colitis. I hope you'll take advantage of this rare opportunity with a special donation to CCFA today.
Personal Story: Jake Marcus
Jake
Jake Marcus's father Stephen was diagnosed with Crohn's disease in 2010. Jake remembers, "I saw my dad struggling and going to the hospital, and that touched me. I felt like something had to be done."
The 23-year-old laced up his running shoes and joined Team Challenge – and that was only the beginning! Two years and five Team Challenge races later, Jake has had an enormous impact on IBD research. Read more about Jake, his father, and the hundreds of thousands of dollars they've raised for IBD research.
If Jake's story inspires you, please join us in the fall for a Team Challenge event!
read more
Join our Financial Management Webcast on July 23!
webcast
The cost of IBD care is significant, and many families struggle with expenses. Our upcoming webcast on Tuesday, July 23, from 3:00-4:00pm ET will provide patients and loved ones with tips for managing healthcare costs. We will discuss several programs that can help cover the cost of treatment for both uninsured and underinsured patients, and speakers will also discuss disability coverage in IBD. There are only a few spaces left – register now!
Advances in IBD
Does your health care provider attend our Advances in IBD Conference? It is the premier annual conference for healthcare professionals and researchers who study and manage patients with IBD. This December, clinicians, researchers, allied health professionals, nurses, and pediatric gastroenterologists will gather in Hollywood, Florida to hear about practice-changing IBD research from world-renowned experts. Tell your doctor about this "can't miss" event!
JULY 2013 ISSUE
Take Steps
TAKE A STEP TODAY!
Take Steps is CCFA's largest fundraising event – please join us for a fall walk! Together, we raise funds and awareness and celebrate the steps we've taken towards treatments and cures. Get involved with your local event! Register today and join thousands of others in the fight against IBD.
2X THE IMPACT
You can make twice the difference for people living with IBD. Until September 15th, your gift to CCFA will be doubled by a generous donor to help fund cutting-edge IBD research.
ROUND UP FOR TREATMENTS AND CURES
Did you know Gary Garfield, President and CEO of Bridgestone Americas, Inc., was the 2013 Take Steps National Chair? This month and next, Bridgestone America's stores and their affiliates are supporting CCFA with a round-up program. Show your support by taking care of your car this summer!
IBD Clinical Trials & Other Studies
CCFA provides a comprehensive database of IBD medical studies and clinical trials. Some of the recently added studies include:
• A brief communication of treatment risks survey being conducted by National Analysts Worldwide
• A study of Trichuris suis ova (TSO) in ulcerative colitis being conducted by the New York University School of Medicine
• A study of oral CP-690,550 as an induction therapy in ulcerative colitis being conducted by Pfizer
Deciding whether to participate in a clinical trial is an important personal decision, best made with a full understanding of the drug development process and a participant's role.
Learn More
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