Tuesday, July 31, 2012

Have you seen CCFA'S New website

In the June Issue of CCFA the Foundation revealed their new website. I am so EXCITED about the new website.
Letter from Rick Geswell, CCFA President Rick Geswell, CCFA President We are excited to announce the launch of the Crohn's and Colitis Foundation of America's new website. Our dedicated team has created a truly user-friendly, interactive environment that serves our patients, caregivers, and medical professionals with invaluable information regarding IBD and the progress we are making towards finding cures. When you visit, you'll find an extensive resources library, a newly updated physician directory, and up-to-date news on research and clinical trials. I hope you will explore our new website, and fill out a short survey to tell us what you think! Here is the link to the new website. http://www.ccfa.org/, Giving a Voice to IBD: Katherine's Story Katherine Raderstorf When Katherine Raderstorf was diagnosed, she was one of many patients reluctant to discuss her disease. But when she realized her voice could make a difference in the lives of other young patients and their parents, she joined CCFA's National Youth Leadership Council and became a tireless advocate, raising awareness and funds to find a cure for IBD. Last month, Katherine participated in CCFA's biggest advocacy event of the year, Day on the Hill in Washington, DC. "I want to keep spreading awareness about these diseases," says Katherine. "Awareness leads to understanding." Read her story here. Read More Short Bowel Syndrome and Crohn's Disease CCFA has compiled a new fact sheet to answer any questions you might have on short bowel syndrome, also known as SBS. This disorder affects people who have had large portions of their small intestine surgically removed as a result of a digestive illness, such as Crohn's disease. Patients with SBS can experience a variety of symptoms related to their body's inability to absorb enough nutrients, fluids, electrolytes, vitamins, and minerals from the food they eat. To learn more about short bowel syndrome, including its causes, symptoms, and treatments – download our latest brochure.

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